INDIANAPOLIS — A new study conducted by researchers at Indiana University-Purdue University Indianapolis has found that adolescents and young adults undergoing cancer treatment gain coping skills and resilience-related outcomes when they participate in a therapeutic music process that includes writing song lyrics and producing videos.
Published early online in Cancer, a peer-reviewed journal of the American Cancer Society, the findings indicate that such music therapy interventions can provide essential psychosocial support to help young patients positively adjust to cancer.
Few interventions target the unique psychosocial needs of adolescents and young adults with cancer, said IU School of Nursing faculty members Joan E. Haase and Sheri L. Robb, who led a team that tested a music therapy intervention designed to improve resilience in such patients undergoing stem cell transplant treatments for cancer. Resilience is the process of positively adjusting to stressors, including those associated with a cancer diagnosis and treatment.
Debra Burns, associate professor of music therapy and interim associate dean for research in the Purdue School of Engineering and Technology at IUPUI, was a member of the research team. Drs. Burns, Haase, Robb and Paul Haut, lead physician on the study, also are researchers at the Indiana University Melvin and Bren Simon Cancer Center. Patrick Monahan , another IU School of Medicine faculty member, also is a team member .
The researchers’ Therapeutic Music Video intervention was designed to help adolescents and young adults explore and express thoughts and emotions about their disease and treatment that might otherwise go unspoken. Through the creative process of writing song lyrics and producing videos, a board-certified music therapist offers structure and support to help patients reflect on their experiences and identify what is important to them, such as their spirituality, family and relationships with peers and health care providers.
As they move through phases of the intervention — including sound recordings, collecting video images and storyboarding — patients have opportunities to involve family, friends and health care providers in their project, maintaining those important connections during treatment and encouraging communication. Once complete, videos can be shared through video premieres, which allow others an opportunity to gain a better understanding about the patients’ perspectives on their cancer, their treatments and their desires for the future.
For the study, 113 patients age 11 to 24 who were undergoing stem cell transplant treatments for cancer were randomized to be part of a Therapeutic Music Video intervention group or to be part of a control group that received audiobooks. Participants completed six sessions over three weeks.
After the intervention, the Therapeutic Music Video group reported significantly better courageous coping. One hundred days after stem cell transplant treatments, the Therapeutic Music Video group reported significantly better social integration and family environment.
The investigators found that several protective factors helped adolescents and young adults be resilient in the face of cancer treatments, including spiritual beliefs and practices; having a strong family environment characterized by adaptability, cohesion and positive communication; and feeling socially connected and supported by friends and health care providers.
“These protective factors influence the ways adolescents and young adults cope, gain hope and find meaning in the midst of their cancer journey,” Haase said. “Adolescents and young adults who are resilient have the ability to rise above their illness, gain a sense of mastery and confidence in how they have dealt with their cancer, and demonstrate a desire to reach out and help others.”
When the investigators interviewed the patients’ parents, they found that the videos gave parents insights into their children’s cancer experiences; however, parents needed help to initiate and sustain important conversations about messages shared through their children’s videos. To address this need, the study team has received funding from the National Institutes of Health and the Children’s Oncology Group to examine the potential benefits of adding a parent communication component to their intervention.
The study’s findings provide evidence supporting the use of a music-based intervention delivered by a music therapist to help adolescents and young adults positively cope with high-risk, high-intensity cancer treatments.
“The availability of music therapy services from a board-certified music therapist in the United States has become more widespread, and through studies like this one, we hope to see increased availability and access to this important allied health service,” Robb said. “One of the challenges in health care today is making sure that research findings from studies such as ours are used to inform health care practices and service delivery.
“One of our team’s next steps is to disseminate findings; train professional music therapists on this intervention; and then conduct an implementation study to examine how the intervention may change as it moves into the standard care setting and whether, in the presence of these changes, patient benefits are maintained.”
In addition to Haase, Robb and Burns, authors of “Randomized clinical trial of therapeutic music video intervention for resilience outcomes in adolescents/young adults undergoing hematopoietic stem cell transplant: A report from the Children’s Oncology Group” are Kristin A. Stegenga, Paul R. Haut, Patrick O. Monahan, Jane Meza, Timothy E. Stump, Brooke O. Cherven, Sharron L. Docherty, Verna L. Hendricks-Ferguson, Eileen K. Kintner, Ann E. Haight and Donna A. Wall.