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Rare Disease Day: IU clinic finds answers for people living with undiagnosed diseases

Rare Disease Day is a day dedicated to advocating for health equity and raising awareness about rare diseases.

Jasmin Cheairs  | Feb 25, 2025
Miles For Myeloma 2

15th Anniversary of Miles for Myeloma

Forty-eight cyclists hit the road in October for the annual Miles for Myeloma ride. Rafat Abonour, MD, leader of the Precision Health Initiative multiple myeloma disease

Anna Carrera
Verba Family

“We knew if we were to get pregnant again, it would be a rocky road.” Patient with rare condition thanks faculty for saving son

When Krista Verba went through her first two pregnancies, she experienced minimal complications. But when it came time for baby No. 3, things were different.

Christina Griffiths
Dr Benson And Terry Baker

First patient to try FDA-approved drug for amyloidosis is thankful

​More than a decade has passed since Terry Baker first noticed signs of amyloidosis. Back in 2008, his toes tingled and felt swollen. He says

Anna Carrera
lettuce-web

Could lettuce help save a life? IU researchers think so.

Eat your vegetables. Research at Indiana University School of Medicine is putting a new spin on a familiar dinner table entreaty, offering hope to many

Sara Buckallew
20190209_cardio_amyloidosis

IU researchers develop clinical trial for heart disease

Two faculty members at Indiana University School of Medicine are looking to improve the health and lives of patients with a specific type of devasting

Marco Gutierrez
tyler-trent-home

Tyler Trent on the importance of research

Photo: On Dec. 19, 2018, IU School of Medicine faculty Jamie Renbarger, MD, leader of the Precision Health Initiative’s childhood sarcoma research team, and Karen Pollok,

Andrea Zeek
Linda Mozzone

XLH patient says new drug is giving her hope for the future

At 55 years old, Linda Mozzone says she’s getting a second chance at life, all because of a new drug from Indiana University School of

Christina Griffiths
postdoc-life

If not me, then who?

If not me, then who? This simple yet powerful adage is what fuels the research of Craig Lammert, MD, assistant professor of medicine and primary

Sara Buckallew
what-is-orphan-drug

Orphan Drugs: Developing Treatments for Rare Diseases

According to the FDA, millions of Americans are currently affected by more than 7,000 rare diseases, many of which do not have treatment options or

Aaron Carroll
Headshot

Dr. Christopher James on the Huntington’s Disease Center of Excellence

By: Dr. Christopher James Indiana University School of Medicine is making strides in a variety of rare diseases, including some in the neurological realm. With

Sonder Collins