Center for Bioethics

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Biobanks and Pharmacogenomics

Faculty in the Center for Bioethics are exploring challenges in research involving human subjects, including the use of biobanks and pharmacogenomics.

Publications

Caulfield T, Ogbogu U, Burningham S, Hyde-Lay R, Joly Y, Isasi R, Borry P, Kaye J, McGuire A, Otlowski M, Fullerton M , Meslin EM, Critchley C, Wallace W, Denburg J, Sears M, Gottweis H, Illes J, Pullman D, Scott C, Kato K, Master Z, Ries N.  The Commercialization of Biobanks: Scoping the Policy Issues Journal of Law and the Biosciences, 2014 94-110 doi:1093/jib/lst004

Siede LV Meslin EM. La ciencia de los biobancos, ¿un derecho o un privilege? Hacia un Nuevo contrato social [The science of biobanks, a right or privilege? Towards a New Social Contract] in:  Biotecnologías e Innocacion:  el compromiso social de la ciensa edited by Elizabeth Hodson de Jaramillo, Teodor Zamudilo.  Bogata, Columbia:  Pontificia Universidada Javeriana.  2013:  252-265.

Meslin EM, Ethical issues in constructing and using bio-banks. In Jonathan Beever and Nicolae Morar, Eds. Bioethics, Science, and Public Policy. Purdue University Press, 2013:  123-135

Meslin EM, Garba I. Biobanking and public health: is a human rights approach the tie that binds? Hum Genet. 2011 Jul 15. PubMed PMID: 21761137.

Meslin EM. The value of using top-down and bottom-up approaches for building trust and transparency in biobanking. Public Health Genomics. 2010;13(4):207-14. 2010 Apr 15. PubMed Central PMCID: PMC2865393.

Schwartz PH. 2009 Walter C. Randall Lecture in Bioethics. Autonomy and consent in biobanks. Physiologist. 2010 Feb;53(1):1, 3-7.

Sly PD, Eskenazi B, Pronczuk J, Sram R, Diaz-Barriga F, Gonzalez Machin D, Surdu S, Carpenter DO, Meslin EM, Ethical Issues in measuring biomarkers in children’s environmental health. Environmental Health Perspectives 2009;117:1185–1190 doi:10.1289/ehp.0800480 available via http://dx.doi.org/ [Online 6 May 2009.

Haas DM, Renbarger JL, Meslin EM, Drabiak K, Flockhart D. Patient attitudes toward genotyping in an urban women’s health clinic. Obstet Gynecol 2008;112:1023-8.

Caulfield T, Brown R, Meslin EM, Challenging a Well Established Consent Norm?: One Time Consent for Biobank Research Journal of International Biotechnology Law (2007) 4; 2: 69-74

Evans BJ and Meslin EM., Encouraging Translational Research Through Harmonization of FDA and Common-Rule Informed Consent Requirements for Research with Banked Specimens. Journal of Legal Medicine 2006; 27: 119-166

Meslin EM, Quaid, KA. Ethical Issues in the Storage, Collection and Research Use of Human Biological Materials Journal of Laboratory and Clinical Medicine November, 2004;144: 229-234

Evans, BJ, Flockhart DA, Meslin EM. Creating incentives for genomics research to improve targeting of therapies. Nature Medicine 2004;10: 1289-91

Study Reports

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume I. Final report of the Health Related Philanthropy Study Group. Indiana University Center for Bioethics. December, 2004. http://hdl.handle.net/1805/638

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume II. Survey of health related philanthropy in the United States. Indiana University Center for Bioethics. December, 2004. http://hdl.handle.net/1805/638

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume III.Annotated bibliographies. Indiana University Center for Bioethics. December, 2004.http://hdl.handle.net/1805/638