Center for Bioethics

Re-Consent in Pediatric Biobanking

Children, whose biological samples have been collected, have not consented to be part of research. Since it is illegal for children to consent for themselves, their inclusion are due to parental consent. Ethical concerns arise when the children have now become adults. Is there a responsibility for researchers to contact them for re-consent?

On October 27, 2016, Jane Hartsock, JD, MA, gave a presentation on the issues that can arise from the re-consent process of pediatric biobanking and whether re-consent is necessary.

Related Resources

When Children Becomes Adults: Should Biobanks Re-Contact?

Children, biobanks and the scope of parental consent 

Consent procedures in pediatric biobanks

Minors’ Assent, Consent, or Dissent to Medical Research