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Biobanks and Pharmacogenomics

Faculty in the Center for Bioethics are exploring challenges in research involving human subjects, including the use of biobanks and pharmacogenomics.

Publications

  • 2014

    Caulfield T, Ogbogu U, Burningham S, Hyde-Lay R, Joly Y, Isasi R, Borry P, Kaye J, McGuire A, Otlowski M, Fullerton M , Meslin EM, Critchley C, Wallace W, Denburg J, Sears M, Gottweis H, Illes J, Pullman D, Scott C, Kato K, Master Z, Ries N.  The Commercialization of Biobanks: Scoping the Policy Issues Journal of Law and the Biosciences, 2014 94-110 doi:1093/jib/lst004

  • 2013

    Siede LV Meslin EM. La ciencia de los biobancos, ¿un derecho o un privilege? Hacia un Nuevo contrato social [The science of biobanks, a right or privilege? Towards a New Social Contract] in:  Biotecnologías e Innocacion:  el compromiso social de la ciensa edited by Elizabeth Hodson de Jaramillo, Teodor Zamudilo.  Bogata, Columbia:  Pontificia Universidada Javeriana.  2013:  252-265.

    Meslin EM, Ethical issues in constructing and using bio-banks. In Jonathan Beever and Nicolae Morar, Eds. Bioethics, Science, and Public Policy. Purdue University Press, 2013:  123-135

  • 2011

    Meslin EM, Garba I. Biobanking and public health: is a human rights approach the tie that binds? Hum Genet. 2011 Jul 15. PubMed PMID: 21761137.

  • 2010

    Meslin EM. The value of using top-down and bottom-up approaches for building trust and transparency in biobanking. Public Health Genomics. 2010;13(4):207-14. 2010 Apr 15. PubMed Central PMCID: PMC2865393.

    Schwartz PH. 2009 Walter C. Randall Lecture in Bioethics. Autonomy and consent in biobanks. Physiologist. 2010 Feb;53(1):1, 3-7.

  • 2009 and earlier

    Sly PD, Eskenazi B, Pronczuk J, Sram R, Diaz-Barriga F, Gonzalez Machin D, Surdu S, Carpenter DO, Meslin EM, Ethical Issues in measuring biomarkers in children’s environmental health. Environmental Health Perspectives 2009;117:1185–1190 doi:10.1289/ehp.0800480 available via http://dx.doi.org/ [Online 6 May 2009.

    Haas DM, Renbarger JL, Meslin EM, Drabiak K, Flockhart D. Patient attitudes toward genotyping in an urban women’s health clinic. Obstet Gynecol 2008;112:1023-8.

    Caulfield T, Brown R, Meslin EM, Challenging a Well Established Consent Norm?: One Time Consent for Biobank Research Journal of International Biotechnology Law (2007) 4; 2: 69-74

    Evans BJ and Meslin EM., Encouraging Translational Research Through Harmonization of FDA and Common-Rule Informed Consent Requirements for Research with Banked Specimens. Journal of Legal Medicine 2006; 27: 119-166

    Meslin EM, Quaid, KA. Ethical Issues in the Storage, Collection and Research Use of Human Biological Materials Journal of Laboratory and Clinical Medicine November, 2004;144: 229-234

    Evans, BJ, Flockhart DA, Meslin EM. Creating incentives for genomics research to improve targeting of therapies. Nature Medicine 2004;10: 1289-91

Study Reports

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume I. Final report of the Health Related Philanthropy Study Group. Indiana University Center for Bioethics. December, 2004. http://hdl.handle.net/1805/638

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume II. Survey of health related philanthropy in the United States. Indiana University Center for Bioethics. December, 2004. http://hdl.handle.net/1805/638

Indiana University Center for Bioethics Health Related Philanthropy Study Group. Health related philanthropy: the donation of the body (and the parts thereof). Volume III. Annotated bibliographies. Indiana University Center for Bioethics. December, 2004. http://hdl.handle.net/1805/638