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Incidental Findings

Incidental findings are medical conditions, which were previously undiagnosed, that are found during an evaluation. There are questions about the obligation that researchers have in disclosing these incidental findings.

Related Resources

Gliwa, C., Yurkiewicz, I. R., Lehmann, L. S., Hull, S. C., Jones, N., & Berkman, B. E. (2015) Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants. Genetics in Medicine, 18(7), 705-711.

Kleiderman, E., Avard, D., Besso, A., Ali?Khan, S., Sauvageau, G., & Hébert, J. (2015) Disclosure of incidental findings in cancer genomic research: investigators’ perceptions on obligations and barriers. Clinical Genetics, 88(4), 320-326.

Abdul-Karim, R., Berkman, B. E., Wendler, D., Rid, A., Khan, J., Badgett, T., & Hull, S. C. (2013) Disclosure of Incidental Findings From Next-Generation Sequencing in Pediatric Genomic Research. Pediatrics, 131(3), 564–571.

Leung, L. (2012). Incidental findings in neuroimaging: ethical and medicolegal considerations. Neuroscience journal, 2013.

Meacham, M. C., Starks, H., Burke, W., & Edwards, K. (2010). Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research. Journal of Empirical Research on Human Research Ethics? JERHRE, 5(3), 31–41.

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