Grndad
SJ
Seethal Jacob, MD
Principal Investigator
Status: Enrolling By Invitation
Ages: 12 Years - 26 Years
Gender: All Genders
Phase: N/A
2 Locations
Brief Description
The primary objective of
this research is to create a multi-site registry to collect longitudinal data
on a well-documented phenotypic cohort of people with sickle cell disease (SCD)
in order to examine risk factors for end organ disease and better understand
how clinical characteristics predict outcomes.
Detailed Description
Develop a repository for the long-term storage of patient samples (whole blood, peripheral blood, serum) along with corresponding demographic and clinical information to allow for clinical and laboratory correlations.
Eligibility of study
Inclusion Criteria:
- Documented diagnosis of sickle cell disease (HbSS, HbS-βthalassemia [HbSβ0 and HbSβ+thalassemia], HbSC or HbS-Variant, including HbSD and HbSE).
Exclusion Criteria:
Per the Principal Investigator’s discretion, the subject’s participation precludes their safety or the subject’s participation may confound the evaluation of the study outcome.
Interested in participating?
Enrollment in IU School of Medicine clinical trials is managed through our All IN for Health program. Many studies only accept people who are part of an invited group. Visit allinforhealth.info to connect with the study team, or contact your doctor to see if you are eligible.